Through a random chain of events, the three of us ended up in a doctor’s office yesterday to get the little man an EEG. An electroencephalogram (EEG) is designed to measure brain waves. It is often indicated in patients who have suffered concussions, seizures, or other head trauma. In our case, an EEG could give us a bit more insight into Tyler’s current state and assist us in further treatment. It also verified we were not, in fact, crazy.

The ideal patient would sit still for ten minutes with their eyes closed but this was extremely anxiety-inducing for Ty and he began shouting about 2-3 minutes in that he needed it taken off…NOW. The tech was very accommodating and did as he requested once it was clear there was no calming him.

We returned this morning to speak with the doctor about the results of his EEG and the results confirmed that he does have about 4-5 areas (out of 19) with some rather obvious dysfunction. What is interesting is that this type of patterning is typical of a head trauma patient. The EEG does not show tissue, only functionality, so while a head trauma patient would likely have damaged tissue, it is highly unlikely in our case. What I did find interesting though, was that the brain wave patterns mirror each other. It makes a lot of sense given that so many head injury patients experience personality changes and the fact that PANDAS seemed to turn our child into a completely different one.

The recommended treatment is what this particular doc is calling MRT (Magnetic Resonance Therapy). It involves a magnetic coil being placed over very specific areas of the brain to stimulate the neurons of that particular area. Given that Tyler’s dysfunction is localized, it isn’t expected to be a difficult case.

MRT involves placing a magnetic coil over a specified location in order to stimulate the neurons to fire, thereby allowing the patient to begin to regain functionality. The work is relatively new but I will admit, it does look promising. For further info on MRT click here.

So…now with the internal struggle. The treatment is experimental and relatively new. This leaves some hesitation on my part with regard to long term effects and outcomes. Though the center has been treating patients with great success for many years, I am skeptical of anything that involves putting some device near my child’s brain.

There are so many factors to consider that it can sometimes be overwhelming. With the gut-brain connection, do we address the gut to heal the brain? Will the brain regain it’s functionality? Can it acquire new functionality if it never “learned” proper function? Will homeopathy, supplements, etc. be enough to kick-start the brain or do we need to give it a bit more help? Don’t worry. These are just hypothetical questions. And they are beginning to make my brain hurt. Best to take a break and just enjoy my beautiful son. For now.

Hugs and Healing,

Mama Bear